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Taking Control: Gaining Independence as a Young Adult with a Rare Disease

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Learn about your rare disease and how it affects your daily activities, communications, skills, strengths, weaknesses, and social interactions. The better you understand your rare disease, needs, and rights, the better you can communicate to others and advocate for yourself. Preparing for the next steps for education and work is a time to ask many questions, reflect on goals, and start planning to better achieve them.


Shipping charges will be added at checkout: 
5 Toolkits: $7.00
20 Toolkits: $12.00
50 Toolkits: $18.00

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