Toolkits come in increments of 5, 20 and 50 and can be ordered at no charge with a nominal shipping fee.

RARE Toolkits useful information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

To see more resources including digital versions of our Toolkits, visit the Global Genes Resource Hub.


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