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RARE Toolkits


Toolkits come in increments of 5, 20 and 50 and can be ordered at no charge with a nominal shipping fee.

RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

You can order printed Toolkits to be shipped to you here or you can access the electronic version of these Toolkits and others by clicking THIS LINK.